Katy Dickinson

Hospital Time

My 16-year-old son has had severe headaches for several weeks with no known cause. Last Monday, after trying other tests and a variety of increasingly strong pain killer drugs, we went in for an MRI (scan of Paul's brain). We did not expect to find anything but unfortunately an unidentified mass showed up. Our family has been experiencing a wild medical adventure since those results came back.

I am writing from Lucille Packard Children's Hospital in Palo Alto, California, where we have been since Thursday morning. World-class medical excellence aside, Packard is a marvelous place for kids, sick or well. The walls are covered with colorful and interesting art (both originals created to illustrate well-known children's books and traditional works from many cultures), there are videos on demand, a computer game room, small and large indoor and outdoor play areas. Our family used Packard hospital for the first time just after Paul was born in 1998, after this hospital opened. Packard hospital has continued to grow and (from the large areas now covered with white plastic sheeting from which construction sounds) growth continues today.

The day before his surgery, we checked in to Packard and Paul's grandparents visited. Paul spent the evening (between medical tests) dragging his grandmother to the game room and watching "Spiderman 3" and "Indiana Jones and the Kingdom of the Crystal Skull" on the monitor over his bed. Since Friday morning's surgery to collect a brain tissue sample, Paul has mostly been asleep. He moved out of the ICU (Intensive Care Unit) onto a regular double room this afternoon. We are waiting for more test results to come back (some are not due until Monday, others in a week). So far, it does not seem to be a tumor or infection but we still don't know for sure what the problem is. The surgeon said that the headaches and whatever-it-is in his brain may or may not be related.

Thank you to everyone! This has been a stressful and frightening experience but we have been wonderfully well supported by our family, friends, and community. Our friend Susan has run emergency errands, and three different families have offered their homes near the hospital in case we need a place to stay. The pastoral care team from St. Andrew's Episcopal Church is helping us get our second car driven home. St. Andrew's prayer shawl ministry presented Paul with a beautiful and soft hand-knitted olive-rust-and-navy small blanket to keep him company in his hospital bed. Our parish priests and St. Andrew's Youth Group leader have all visited and prayed with us. We feel very well cared for both in terms of medical support and prayers and good wishes. We can almost feel the hands of God surrounding and protecting us.

Paul got out of bed, changed into his own pajamas, sat in a chair then ate three grape popsicles for the first time just now. Praise God from whom all blessings flow!

Posted at 06:37PM Feb 07, 2009 by katysblog in Home & Family  |  Comments[1]