Until recently I never appreciated the phrase "a belly full of bile", which I had always assumed meant a person was angry. The truth as I now know it is that a belly full of bile will make you sick. Really, really sick.
On the evening of April 16th I was sat on a conference call. Half way through I had to apologise to my colleagues then drop off the call because of pain across the top of my abdomen. The next day I saw my family doctor who wasn't able to identify anything specific but told me to go home, rest and come back if things got worse. By the second day I was really bad, the pain changed from a broad-based pain to a very narrowly focused, sharp pain located on the right side of my abdomen just under my rib cage. I was also hot and had very little strength. I went back to see my family doctor and although it is only 300 metres from home my wife had to take me in the car. When my doctor took my temperature, blood pressure and heart rate she told me to lie down on the bed in her surgery, she then put me on oxygen and dialled for an emergency ambulance. At this point I was quite scared. My wife was called in from the waiting room and seeing the shock on her face didn't help me at all. We live in a small village about 8 miles from the nearest ambulance station so it took a while for the paramedics to arrive. Eventually two smiling paramedics bounced into the doctor's room and I was relieved to see that one of them was a friend of mine, a fellow volunteer with the Freewheelers blood bike service. This put me at ease, in fact the 11 mile drive to hospital in the ambulance was a great laugh. I thank them both for putting me at ease during a stressful episode.
In the hospital's accident and emergency department I didn't have long to wait before I was given a thorough examination by a junior doctor who quickly identified that my gall bladder was inflamed, something that was confirmed by ultrasound scan and a consultation with one of the gastro-intestinal surgeons. Interestingly the scan didn't show any gallstones, exactly the same result as a scan I had back in January when similar pains pointed towards possible gall bladder problems. From the start this made me an unusual case as most people's gall bladder problems are caused by gall stones. I should have taken this as bad omen number 1.
As I was admitted on a Friday and NHS hospitals in the UK only do emergency surgery at the weekend, I was told I would have my gall bladder removed on Monday. The trouble with this situation is it builds up a queue of patients for surgery on Monday and as it happened I got "bounced" off Monday's surgery list by a patient with a ruptured appendix - something that apparently trumps a gall bladder! On Tuesday I got my operation, a laparoscopic cholecystectomy - keyhole gall bladder removal to you and me. When the surgeon came to see me she told me it had been a very complicated and messy operation as my gall bladder was stuck onto my liver and other organs as well as the internal walls of my abdomen. I should have taken this as bad omen number 2. After the operation the medical staff continued to monitor me and grumbled frequently about my odd liver functions revealed by the daily blood tests. Bad omen number 3 maybe...
After a week in hospital I was sent home, complete with antibiotics and dire warnings that I should come straight back if I began to feel unwell. I was also told that I should have a blood test after two weeks to check my liver function was improving. As it turned out, I didn't need the blood test because exactly one week later I started to get really ill. Bizarrely I had the same strong pain in the same place accompanied by the high temperature, fast pulse and low blood pressure that cause my family doctor to send me into hospital the first time. Being a man an idiot I tried to be macho about the pain and so didn't do anything about it for 24 hours. However, the next day I couldn't stand it any longer so back I went into the hospital
For the next 17 days in that hospital I went through hell. I had a terrible infection which gave me fevers of almost 40°c and as a consequence I had IV antibiotics pumped into me 3 times a day for 16 days. It turns out that a set of freak circumstances meant that the 500 ml (1 pint) of bile produced each day by my liver wasn't travelling through my bile duct into my intestines, but instead was venting straight into my abdominal cavity. The symptoms that put me back in hospital were due to that bile, which is corrosive and thus very painful, getting infected. The complicated and lengthy nature of my first operation meant that the surgeons were unable to check my bile duct for blockages. Although I didn't have any gall stones big enough to be seen on an ultrasound scan I did have some very tiny ones. Some of these had gone into my bile duct and blocked it. My surgeon told me it is not uncommon for people to have congenital deformities in their bile ducts - extra branches known as accessory bile ducts. In my case, such a deformity had produced an easy escape route - a path of least resistance - for the bile to vent into my abdomen rather than push past the gall stones and out into my intestine. As a result I had to undergo two more surgical procedures. The first was a hugely painful procedure, without anesthetic, using an ultrasound scanner to help guide the surgeon to insert a drain into my abdominal cavity to drain off all the bile. The second, called an ERCP (Endoscopic Retrograde Cholangiopancreatography), involved sending a scope down my throat, through my stomach and duodenum to reach my bile duct. The surgeons injected die under pressure into my bile duct which was then x-rayed to reveal the full extent of my problems. They were then able to clear out the blockage and weaken the muscle which keeps the bile duct closed to create an easy path for the bile to drain - meaning it shouldn't go out of the abnormal extra exit which my bile duct had. This was also done without anesthetic, although I was given some morphine as a pain killer and pethidine (meperidine) as a sedative so that I wouldn't remember much about the procedure. In the end all I remember was them saying "good work, let's get the scope out" and then feeling the scope snaking through my stomach, up my throat and then out of my mouth. Yeuch.
After 24 nights in hospital (with no Internet connection!), following an operation that detains most people for just 3 nights, I finally got to go home. I still felt ill, had huge amounts of pain due to nerve damage caused by the drain tube, and was weak as a kitten, but I was home! After 10 days I am improving but still weak and still in pain. The good news is that I lost 34 lbs (15 kg) weight, something that was frankly overdue. My new, no gall bladder, low fat diet-for-life now means I stand a good chance of not putting that weight back on and maybe even lose a bit more. So now I have the joy of seeing my motorcycle leathers fit exactly as they were meant to, but the disappointment of not being able to get on my bike because I just don't have the strength or even the will to do it. I don't blame the medical staff at the hospital for anything. They didn't do anything wrong. My freaky sticky gall bladder meant they weren't able to check my bile duct during the first operation. My freaky mini gall stones meant that I was the one-in-a-thousand that gets a blocked bile duct after it isn't checked. And my freaky bile duct deformity meant it was easy for 500 ml of corrosive bile to vent into my abdomen every day. And all of this from a stomach pain that came on in a matter of seconds during a conference call over a month earlier!




Mike,
I followed the problems you were having on Facebook, sorry to hear about them and I hope you're feeling better soon (at least to get back on your 'bike 'cause I know how much you like it).
All I can say is that's what conference calls will do for you dude... the only way forward is to avoid them like the plague...
Wayne
P.S. I had an endoscopy a few years ago, followed by kidney stones, which then repeated a couple of years later. Not fun. What you went through sounds a thousand times worse. Glad to see you're recovering.
Posted by Wayne Horkan on May 29, 2008 at 05:47 PM BST #
Sorry to hear about your difficulties. Get well soon.
Gaining gall stones sounds like a tough way to lose 2.5 stone.
Posted by Mark J Musante on May 29, 2008 at 09:19 PM BST #
oh my! Glad you are feeling better and back home. I'd imagine that hospitals in the UK are not any more fun than in the US...
Barb
Posted by barb on May 29, 2008 at 11:14 PM BST #
Mike,
Next time I'm on a concall with you, and you say you're not feeling well, I'll just tell you to call an ambulance and be done with it!
No more concalls for you until you're back to 100%, right?
Posted by Kate Morris on May 30, 2008 at 08:59 AM BST #
Hi it sounds like you went to hell and back, I also has my gall bladder removed 2 yrs ago, I suffered for 2 years prior to the operation with pain in the cntre of my stomach below my rib cage and it would raditate to my back. After a million blood tests,ct scans ect... they never found any stones in my gall bladder or my main bile duct, and my liver function tests were all normal. The doctors took a punt and thought it was my gallbladder, so they decided to operate,once they opened me up they found small stones in my gallbladder and they removed the gallbladder, BUT they also identified a small stone in my main bile duct, this operation was to take about 1 hour it was key hole well 4 hours later and the reason being that they were unable to get into my very small opening of my bile duct to get the stone out. So they stopped the operation and I was sent to recovery but my doctor telling me that the gall bladder removal was done but we came across problems with your bile duct and we were unable to get into the duct we tried and probed but were unsucesful so you require to go into theatre tommorow and have a Ecpr and that should work and approx take 1 hour. Unfortunately the next morning it took 3.5 hrs and again they unable to get into my duct to un block because it was too narrow so th stone was not taken out. I was taken to recovery to given the bad news that I was needing another ECPR procedure in 3 days. In the meantime my recovery was not good as I had pain because of all the probing that they had done. I returned 3 days later had the procedure and aprox 2 hrs later I was taken to recovery and they told me again they were unable to enter the duct but only got into it 1 mm which was not enough but in the small space of 1 mm they were unable to see the stone but really they told that they had lost or hopefully I had passed it. Imediately after surgery I felt hug amount of pain and felt un well as a result to surgery and complications I got pancreatis. I eventually recovered but from time to time I still get that pain in the middle of my stomach and into my back. It has now been 2 years since the operation of HELL but in the last 12 months again this pain is there more often and now I am begining test and ct scans because it is very possible that the stone is still in the bile duct. I will keep you posted but as you said a simple gall bladder operation with a 3 day stay end up being my biggest nightmare..... Marilyn
Posted by Marilyn on June 29, 2008 at 11:22 AM BST #
Marilyn - I'm sorry to hear about your experiences. It seems like you have come off worse than I did, for which you have my utmost sympathy. That bile duct pain is indescribable! Mike
Posted by Mike Belch on June 30, 2008 at 09:25 AM BST #
Thanks for inviting me to view your blog. It made fascinating reading.
Although now, i'll have to subject you to my story! Heh heh...
I was six weeks pregnant with my second (and last!) child when one evening i suffered the most awful abdominal pain. A doctor came and out to see me and diagnosed heartburn. Hmm
It was only when i had a routine pregnancy ultrasound scan, that it was discovered that i had gallstones - lots of them, in varying sizes.
For four years i suffered repeated attacks of biliary colic and spent many a night at the local hospital getting morphine injections.
Anyway, earlier this year i decided that enough was enough, and i decided it was time to have my gallbladder removed.
I was duly placed on the waiting list and told that i could expect to have it removed within four weeks. Things didn't quite go as planned.
One evening In May of this year i had a particulary bad episode of biliary colic. Morphine no longer helped, and the doctors at my local hospital told me to go home and pack a bag. Then they arranged for an ambulance to take me as an emergency patient to a hospital a few miles away.
I was admitted, and had an ERCP under heavy sedation (which thankfully i neither felt or can recall). It didn't appear as though there were any stones stuck in my bile duct, but i still turned a lovely shade of yellow and threw up the liquid morphine they kept giving me at every opportunity.
After a week my jaundice calmed down and i was discharged.
Soon after, in June, it was time for my operation. I'd had blood tests taken a few days before and thought that everything would soon be sorted. Well, all my pre-operative tests went well, and then the surgeon came in to my room and said that he couldn't go ahead with the operation because my liver function tests were abnormal. So i was sent home. I was gutted. I even had my ID bracelet on and everything!
I had to return to have an MRI scan (scaaaaary!), but this proved inconclusive.
So, a new appointment was booked, and on July 21st my gallbladder was removed. End of story......um, well, not quite.
The surgeon was able to remove my gallbladder by keyhole surgery, but i wouldn't stop bleeding. He couldn't find the source of the bleed, so had to convert to open surgery. It turned out that my pesky liver was the problem, and the surgeon had to stop the bleed before he could stitch me up. An operation that should have taken 30-45 minutes ended up lasting 2 hours 45 minutes.
I stayed in hospital this time for three days, was discharged, and then returned with complications (fluid on the lung) the following day, and then spent another three delightful days in hospital because of that...
Well, it's almost 6 weeks since my op now. My keyhole wounds are healing well and no longer cause me pain. However, the same can't be said for my larger wound where the surgeon opened me up. I still have alot of pain, and my tummy muscles are gone! I look pregnant again. *Sob*
I have my appointment with my consultant on Monday of next week, so i'll see when i can start lifting heavier things and when i can do abdominal exercises to get rid of this flab! I'm normally only a size 10, and to see my huge tummy is so upsetting for me.
Well, Mike, thanks for letting me crash your blog - bet you're regretting that now eh? ;)
Take care, and i'm sure i'll chat to you more on MSE. :)
Posted by Paula on August 28, 2008 at 09:38 PM BST #
Wow. You went through hell.
Just had mine out last night, now having read this I'll be a tad vigilant. Hope you're well now.
Cheers.
Posted by Corinna on December 11, 2008 at 05:23 AM GMT #